Sunday, February 13, 2011

Heart Mom

(Me and Elaine)

I have laid my daughter on an OR table & I have handed her to a surgeon, knowing they would stop her heart and I prayed it would beat again-four times. I have learned more than I ever thought I could and cried more tears than I ever thought possible. I have walked a road I never knew exsisted, until now and celebrated victories I never would've thought of. I will walk this road forever..I am a Heart Mom, to a beautiful Angel!

I stole borrowed this quote from a fellow heart mom from her facebook status. I modified it a bit (our children have different genders) to fit my needs. It's so true though. I have learned so much from my experiences, and traveled a very different road from most people. And I'm glad most people do not need to experience this. It's hard, gut wrenching and is so scary. I wore my Heart Mom pin today, because I too have scars. They aren't visible, but I know they exist. I feel them everyday. I wouldn't change being a Heart mom, it has made me who I am. I'm proud to be a heart mom.

Friday, February 11, 2011


What have YOU done to promote Congenital Heart Defect Awareness this week? Please leave a comment and let me know. Did you give blood? Wear a CHD shirt? Talk about CHD's to someone?

Thursday, February 10, 2011

A CHD Poem

A Father's Heart
A man walks through the double doors,
His eyes tell quite a story,
Although he has grown weary,
He still gives God the glory.
His child lives within these walls,
As many children do,
Look high up on the sign, you’ll see
That it says…ICU.
The nurses nod as he walks in,
And sets down all his things,
Although he knows what to expect,
Somehow it always stings.
He bends to kiss his sleeping child
His hands stroking soft hair,
And everyday the nurse can hear,
This tired father’s prayer.

Lord, please watch my child today,
And let him know your here,
Give him strength so he can fight,
And calm his every fear.
Wrap your arms around him,
The way I wish I could,
Remind him just how much he’s loved,
Remind him life is good.
I feel so very helpless,
Not sure what I can do,
I cannot even comprehend,
The things that he’s been through,
Give me strength to fight for him,
And help me understand…
Help me to accept your will…
No matter what the plan.
Lord, I know you’ll answer me,
And yes, I know you care,
Thanks again for hearing,
One father’s heartfelt prayer.
If someone stopped to ask him,
Are things going alright?
He’d feel no need to mention,
He didn’t sleep all night.
If we were given just a glimpse…
If we could see in part…
What thoughts and hopes are there to find
Within this father’s heart?
A father’s perspective…
My child has a heart defect,
Its “my job” to be strong,
And tell my wife things will be fine,
(And pray that I’m not wrong)
And still the bills need to get paid,
And things need to be done,
And it’s so hard just sitting here,
“I want to hold my son!”
I lean down as I watch him breathe,
“Keep fighting”, is my plea,
“I thought I’d teach you to be brave,
“But son, you have taught me”.
I hear the beeping of machines,
(They help my child live)
I wish that I could take his place,
(There’s nothing that I wouldn’t give!)
To have the faith and strength I need,
To hold back all my tears,
To say I know he’ll be okay,
Despite all of my fears.
I”ll only lose composure,
When no one’s here to see,
I will be the “strong” one,
As I’m supposed to be.
A daddy says,” Come to my arms,
I’ll chase all those monster’s away”,
I cannot change God’s plan for him,
But I can hope and pray.
A daddy needs to cry sometimes,
And God must see right through,
That ” tough daddy exterior”,
For He’s a daddy too.
~Stephanie Husted

Wednesday, February 9, 2011

CHD Week Wordless Wednesday

Tuesday, February 8, 2011

It's CHD Week!

Somewhere...someplace... today...
A family is waiting to hear...
Is something wrong with their baby?
The answers aren't quite clear...
This family has entered an unwanted world...
And they just don't know what to expect...

Somewhere...someplace... today
They first heard the words: heart defect.
And how they hoped this was not true...
And thought... this cannot be...I too...
know just how this feels...
For one day...this was me.
And how they hoped this was not true...
And thought... this cannot be...I too...
know just how this feels...For one day...this was me.
A man and a woman embrace...
Their baby is in surgery...
They long to see her face...They haven't got to hold her yet...
Without...a cord or line...They pace the room awaiting news...
And hope she'll be just fine.
Prayers fill this busy waiting room...
And mom and dad are scared...
The tiniest hearts are repaired.
A child's growing fast...Smiling,laughing,thriving...
His mom thinks...can this last?
It's almost forget...
That anything is wrong...
Her child seems so strong.

Somewhere...someplace... today...
A little boy fights...just to live
A father holds his tiny hand...His love...all he can give...
The doctor's are all baffled...
They fear that he might die...
A family says goodbye...

Somewhere...someplace...each year..
More than 40,000 families will see...What it means...
when something's wrong...They'll face a CHD.
Today...for just a moment...
Make time to tell someone you know...
"I've been changed by a heart defect".

Author - Stephanie Husted
Tonight, please say an extra prayer for strength, courage, hope,

and faith for the CHD babies
and families of this world.

Monday, February 7, 2011

CHD Awareness Week

CHD Awareness

February 7-14, 2011 is Congenital Heart Defect Awareness Week.

A Congenital Heart Defect (CHD) means a child is born with an abnormally structured heart and/or large vessels. Such hearts may have incomplete or missing parts, may be put together the wrong way, may have holes between chamber partitions or may have narrow or leaky valves or narrow vessels. There are approximately 35 different types of congenital heart defects.
**CHDs are the #1 birth defect in America, affecting approximately one in one hundred or 40,000 newborns every year.Each day 10,830 babies are born in the U.S.; 411 of them have a birth defect -- of those, 87 will be born with a congenital heart defect -- that's more than cerebral palsy (27), sickle cell disease (27), Down Syndrome (12), and oral/facial clefts (11) combined (total of 77). (According to the March of Dimes)

**CHDs are responsible for one third of all birth defect-related deaths, and sadly 20 percent of children who make it through birth will not survive past their first birthday.
In the United States, twice as many children die from congenital heart defects each year than from all forms of childhood cancer combined, yet funding for pediatric cancer research is five times higher than funding for CHD.

**For many children a new heart is the only option, but only about 30% of the children who need a heart transplant receive one in time. Elaine was one who was part of the 70% who could not wait long enough. In 2007 there were 327 pediatric heart transplants performed in the United States. The average heart transplant only lasts around 10 years.
(Elaine right after her 3rd open heart surgery)

What can you do?

Support Intermountain Healing Hearts! At PCMC, there is a table set up for CHD week with fliers, books, information, and also toys and candy. We were also able to get a large sign hung over the parking garage. This sign acknowledges CHD week. We are slowly trying to get more involvement and awareness in our community. We hope you are all doing the same! You can also donate to Intermountain Healing Hearts on the website, through paypal, or directly to the PO Box. Thank you to all!

Wednesday, February 2, 2011

Look who is 8

Eight years ago, Violet was born. A whopping 9 lbs 6 oz and 18 inches. She is a joy. We love you so much Vi! Happy Birthday!!